MARFAN SYNDROME INFORMATION AND SUPPORT GROUP | MARFAN FOUNDATION, THE
Provides information, peer support and educational materials for those affected by Marfan Syndrome Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions. The Foundation also supports research on these conditions all over the world through our research grant program and GenTAC, our research arm. Individuals and families can get connected and get the information they need through our Help & Resource Center, which can be reached through Marfan.org/ask.
Physical Address
22 Manhasset Avenue, Port Washington, NY 11050
Hours
Mon 8 am - 4 pm; Tue 8 am - 4 pm; Wed 8 am - 4 pm; Thu 8 am - 4 pm; Fri 8 am - 4 pm;
Voice
Voice
Fax
(516) 883-8040
Website
Application process
Call for details
Fee
None
Required documents
Call for details
Eligibility
Open to anyone
Languages
English
Service area
United States
Agency info
MARFAN FOUNDATION, THE
Provides information, referrals, peer support and educational materials to those with Marfan Syndrome.