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MARFAN SYNDROME INFORMATION AND SUPPORT GROUP | MARFAN FOUNDATION, THE

Provides information, peer support and educational materials for those affected by Marfan Syndrome Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome (VEDS), and other genetic aortic and vascular conditions. The Foundation also supports research on these conditions all over the world through our research grant program and GenTAC, our research arm. Individuals and families can get connected and get the information they need through our Help & Resource Center, which can be reached through Marfan.org/ask.

Physical Address

22 Manhasset Avenue, Port Washington, NY 11050

Hours

Mon 8 am - 4 pm; Tue 8 am - 4 pm; Wed 8 am - 4 pm; Thu 8 am - 4 pm; Fri 8 am - 4 pm;

Fax

(516) 883-8040

Application process

Call for details

Fee

None

Required documents

Call for details

Eligibility

Open to anyone

Languages

English

Service area

United States

Agency info

MARFAN FOUNDATION, THE

Provides information, referrals, peer support and educational materials to those with Marfan Syndrome.